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Kseniya Simonova came to Kiev to support children with a rare illness

24 апреля 2015 Просмотров - 11 Нет комментариев Опубликовал:


Мастер Песочной Анимации посетила столицу — что бывает не так часто — чтобы поздравить деток, больных редким заболеванием Ювенильный Ревматоидный артрит — с их днём. Правда, Ксения призналась, что больше всего ей хочется, чтобы детки поправились и такого дня вообще не было. Праздник состоялся в Шоколадном Доме, в самом сердце Киева. Были приглашены представители Правительства Украины, журналисты различных медиа. И, конечно, маленькие «чуда» — как называет своих новых друзей Ксения, — и их родители. Полгода назад Ксения узнала о существовании двухсот пятидесяти маленьких украинцев, больных редчайшим и очень серьёзным заболеванием- ювенильным ревматоидным артритом. Тогда она познакомилась с маленькой Соней из Одессы и от волонтёров и бабушки девочки узнала её историю и истории других деток. Встретившись теперь с Ксенией, маленькая Соня рассказала ей о своих успехах — победе в конкурсе Восточного танца, участие в выставках, овладение техникой батика. И — к великой радости Ксении — подарила ей свою работу в стиле батик под названием «Жираф». Кроме того, Ксения попросила деток нарисовать на холсте большую картину, где они бы могли выразить свои мысли и мечту — быть здоровыми. Что они и сделали. Активисты собираются передать картину Президенту. — Надеюсь, теперь, когда на нашем «круглом столе» присутствовали представители Правительства, детки получат необходимую помощь, а получив её, смогут жить полноценной жизнью, — говорит Ксения, — Это удивительные, тонкие, глубокие души, они достойны лучшего, достойны быть здоровыми. Сразу после встречи Ксения отправилась в Евпаторию, работать в своей песочной студии над очередным песочным фильмом. В планах у художницы творческая поездка в Нижний Новгород, а потом — выступление на грандиозном рок-марафоне в Германии. The Lady of the Sand came to the capital of Ukraine to congratulate kids who suffer with Juvenile Rheumatoid Arthritis with their Day. Though she confessed that it'd be much better if they were healthy and this day did not exist at all. There are about 3,000 children with Juvenile Rheumatoid Arthritis (JRA) in Ukraine, and 250 — with a very serious stage of this illness. If they receive a proper treatment which is very expensive for a family but normal for the Government, they will fully recover. In other case they do not grow, need the transplantation of bones, become blind and die in an early age. The volunteers who support these kids and their parents want the Government to help them with treatment. Half a year ago they addressed to Kseniya and asked her to be the soul of their movement. Kseniya agreed. Then she met Sonya — a little girl from Odessa with a hard stage of JRA. — She is an amazing girl, very tiny — aged 8, she looks like my four year old son, but very intelligent and talented. Her short life was full of suffer and pain but she shined like a sun. These kids are really outstanding! — Kseniya says. Now, when the Sand Fairy Kseniya Simonova came to Kiev, she met Sonya again, and other kids with JRA: — Sonya grey up a bit — it is great, — the artists says, — She told me many things about her little wins — she dances, draws. I received a marvelous present from her — a batik picture of a giraffe which she made herself. I was happy! The film about Sonya and Kseniya's sand story "The Dawn of Hope" devoted to children with JRA were shown there. Then Kseniya took big canvas and paints, gave them to kids and asked to draw a picture for the President of Ukraine.
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